I just wanted to put
a few of my feelings down in writing and
what better place then this?!
As you know
we have now had our appointments with
Dr Rosier (Our Paed) ,
Dr Lowe (Our Rehab Specialist) and most recently (On Monday)
Hilary (Our new Physio from DADHC). These have all
happened quite fast in the scheme of things, people usually wait
4 - 6 months plus to see these people .
We have been very fortunate in that respect. Today I got
the phone call from
The Canberra Hospital that
Zachary will now have
his MRI on Friday December 19th. I guess with everything moving along and with Christmas etc I haven't really taken much time to
sit and ponder but after
the call today I think things started to sink in and really hit home.
'
My gorgeous little boy has Cerebral Palsy'
Things started going through my mind.....'
Why him?!' '
How will this effect our life?' '
How will this effect his life?' '
What would have things been like if.......'. You know
those questions that we all ask ourselves at times. I know
no one really has any answers to any of these at this time. Being only 18 months old it is
still quite hard to predict how life is going to go and how things will pan out. After seeing
Dr Lowe the feeling is that he may be
3 or more before he can walk on his own and he will have
life long problems with co-ordination. This
makes me sad and if I sit and think about it for to long it makes me
very sad. I am now adding to the stress by thinking about the MRI.
Zachary has to go under
a general for the MRI because
he stay very still - try asking an 18 month old to '
stay very still' at any time! I really don't like the thought of him '
going under' even for the short time it will be -
what if he has a reaction? Silly I know but the thoughts are still there.
What if they don't find anything? Then what? At least if they find anything then we will sort of have a
concrete answer and more of an idea of the severity of things (
or mildness I hope!). I have to wake him up at
4:30am and feed him because he can only have
breast milk after 2am and
nothing after 5am. We have to be
at the hospital by 7am for admission and hopefully they get the MRI done soon after as I can imagine
he is going to be very hungry!
Ashlee,
Mitchell and
Anna will
stay at my mum's as I'm not sure how long we will be there. This will be the first time
Anna has gone anywhere without
Zach too.
How will she go?
Please keep us in your thoughts and prayers. On Thursday December 18th
Zach has an appointment with
Hilary again to do some
more physio and we will also
pick up some equipment that will make things a bit easier around here. A standing frame (
so he isn't hanging off my legs constantly), a bath seat (because he is now to big for the baby ones and tips it over) and we are also looking into getting a
weighted trolley for him to practice some walking. We will be seeing the OT (
Occupational Therapist) soon too.
All these
has just been on my mind and I needed to get it out
so if you have read this far 'Thank You'......